
In a house that looks from the outside much like any other
home in Dos Vientos, a mother struggles every minute of every
day to keep her son alive.
When 8-year-old Elijah isn't having a seizure, his mother,
Terri Granard, is still on alert, watching and waiting as she
has every day since Elijah was 6 months old, prepared to give
lifesaving resuscitation.
"It's like waiting for a car crash that you know is going
to happen," she said.
Elijah appeared to be healthy when he was born on Aug. 29,
2000, after a normal pregnancy, his mother said. He was
welcomed into the family by his 1year-old bigger brother,
Noah.
Then, on Feb. 18 the next year, Granard and her husband,
Ryan, woke up to Elijah having a seizure.
"My husband asked, 'What's wrong with Elijah?'" she
recalled.
His question wouldn't be answered for some time. The first
event was thought to have been triggered by a fever. But the
next day Elijah had another seizure, and "boatloads of testing
with Xrays and blood tests" followed, according to his mother.
No cause for the seizures could be found.
Finally, a DNA survey with a chromosome analysis revealed
that the baby had a condition called ring chromosome 14
syndrome, or ring 14. Elijah is one of 300 known cases in the
world, his mother said. Ring 14 is a rare, noninherited
genetic condition.
The medical community said the prognosis regarding Elijah's
longevity was poor—that he would live only until age 2 or 3.
In addition to the seizures he's had strokes.
In a few weeks Elijah will turn 9. Those who gave him just
a few years to live didn't take into account the determination
and love his family has for him.

His big brother is an "awesome, smart" fifth-grader who
helps his brother a lot, Terri Granard said..
And one of the family dogs, a rescued Doberman, has,
without training, learned to signal with one bark moments
before a seizure occurs.
When Elijah has a seizure, which usually happens one to
five times a day, he stops breathing, turns blue and becomes
limp like a rag doll, his mother said. The family employs a
fulltime nurse to help out with Elijah.
Sometimes he has days with no seizures.
"That's a really good day for our family," Granard said.
But when a seizure does occur, Elijah must be quickly
revived. A device similar to a pacemaker, medically imbedded
in his chest, stimulates nerves in the chest with electrical
impulses. A magnet is used to swipe his chest for an extra
jolt. CPR is also necessary.
When he's not having seizures, Elijah behaves mentally like
a 1-year-old child due to brain damage from the lack of oxygen
when he stops breathing during the seizures.
"He has suffered brain damage similar to a near-drowning
victim," his mother said.
He watches the Wiggles on TV. He's fed through a tube.
Elijah crawls but cannot walk. He's learning sign language,
but every time he has a stroke he goes back to square one, his
mom said.
"He is the happiest little boy despite his medical
situation. He also has the most angelic face," Terri Granard
said.
For more information, go to
www.ring14.net.